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Do you or your loved one experience a range of emotions about vitiligo? You’re not alone. Vitiligo can trigger many different emotions.

Expressing your feelings and emotions can make a real difference for you, your friends and family, and other people living with vitiligo. It’s also a great way to make sure you get the support you deserve from your healthcare provider.

Embrace your family and friends

Whether you naturally tend to keep your feelings in, or simply don’t want your loved ones to worry, being hesitant is normal. Talking openly and honestly with your loved ones about your condition and explaining how you feel could help them provide the support you deserve.

When you’re ready to open up with family and friends, here are some topics to consider:

TELL YOUR FAMILY AND FRIENDS:

How you’ve been feeling about your vitiligo lately (don’t be afraid to be honest)
What you need from them to feel supported
What you know about vitiligo (it’s an autoimmune condition, it’s not contagious, etc.)
The questions that you’ve been curious about

ASK YOUR FAMILY AND FRIENDS:

What they’d like to know about vitiligo and your personal experience
To be advocates for you and the vitiligo community

Does a loved one have vitiligo?

It’s important to give them the chance to express how they’re feeling and ask the questions they’re wondering about. There’s a community here ready to help support both you and your loved one to find the answers they’re looking for.

Connect with your peers

Your care team—bring your honest thoughts and questions

This is a big one: You’ve got to be honest and open with healthcare providers because it may be the only way they really know what’s going on.

DON'T say you're good if you're not good
DO ask them the questions that have been on your mind

Tell it like it is and they'll be able to work with you to manage your vitiligo together. Remember, you can start and lead the conversation about your vitiligo at any time.

If you haven't seen a dermatologist about your vitiligo in a while, or haven't seen one yet, think about scheduling an appointment. With this tool*, you could virtually connect as soon as today.

Connect with a dermatologist

*Incyte has engaged Populus, a telemedicine marketplace, to enable patients to consult healthcare providers virtually. All providers make independent prescribing decisions and are not paid by Incyte.

When you’re ready to see a healthcare provider about your vitiligo, consider these talking points:

TELL YOUR PROVIDER:

Any new areas where vitiligo has popped up or new spots you’ve noticed
The emotional or mental impact that vitiligo may have had on your life recently
Any other symptoms (physical or emotional) you may be experiencing

ASK YOUR PROVIDER:

How can we work together to better manage my vitiligo?
What’s new in the world of vitiligo research?
What can I do to protect my skin?

Advocacy groups—in your corner

If you’re looking for additional information or support check out these advocacy groups.

Incyte Corporation is not affiliated with these organizations but has provided funding for some of their educational programs. This is not a complete list of organizations within the vitiligo community and being listed here should not be considered an endorsement of any particular organization.

VITFriends

Vitiligo Support International

Vitiligo Research Foundation

Global Vitiligo Foundation

VStrong

Beautifully Unblemished

Make your voice heard

Through the Incyte Dermatology ADVocate Network, you can share your vitiligo story and help inspire others on their journey

Share & connect

Start the conversation

It sounds like you’re currently feeling pretty good about your vitiligo, and that’s great! But it’s okay if you don’t feel that way every day. How you feel can change at any time, and if it does, it’s important to speak up—lead the conversation with the people who matter to you, and make sure they understand where you’re coming from. Here are some ideas:

Be crystal clear with your care team

Have you spoken to a dermatologist lately about vitiligo? Not only can your condition change, but treatments change, too. And you owe it to yourself to have an honest conversation about managing your condition. If you’re feeling confident, go in and lead the conversation. Be sure to remind your healthcare provider about your history with vitiligo, any treatments you’ve tried, and your real feelings about it. They are there to listen to your feelings and concerns, answer your questions, and can tell you about available treatment options if you’re interested.

If you’re ready to meet with a dermatologist, but don’t have one just yet, fill out this brief survey. You can get connected virtually* with one as soon as today.

Connect with a dermatologist

*Incyte has engaged Populus, a telemedicine marketplace, to enable patients to consult healthcare providers virtually. All providers make independent prescribing decisions and are not paid by Incyte.

When you’re ready to see a healthcare provider about your vitiligo, consider these talking points:

TELL YOUR PROVIDER:

Any new areas where vitiligo has popped up or new spots you’ve noticed
The emotional or mental impact that vitiligo may have had on your life recently
Any other symptoms (physical or emotional) you may be experiencing

ASK YOUR PROVIDER:

How can we work together to better manage my vitiligo?
What’s new in the world of vitiligo research?
What can I do to protect my skin?

Tell family and friends what’s going on

If you’re ever hesitant about sharing your feelings because you don’t want your loved ones to worry, know that you're not alone in feeling that way. Just try to remember that talking to your loved ones about your condition could help them provide the support you deserve.

If you’ve already been clear with them about your feelings, great! If not, then maybe it’s time to try opening up with them a little more about how you really feel about vitiligo.

When you’re ready to open up with family and friends, here are some topics to consider: